The pancreas is an organ in the abdomen behind the stomach.

cystic fibrosis sufferers dating-6

Many people carry a CF gene, but do not have symptoms.

This is because a person with CF must inherit 2 defective genes, 1 from each parent. It is more common among those of northern or central European descent. For a small number, the disease is not detected until age 18 or older.

She had been so unwell and the diagnosis was devastating."In the six months before she started taking Kalydeco, Alexandra had to have hospital stays every three months for two weeks.

After she started taking Kalydeco she had shown improvements within a week. Unless you have a chronically ill child you won't understand, but CF had taken over our lives.

Cystic fibrosis (CF) is a life-threatening disease that causes thick, sticky mucus to build up in the lungs and digestive tract.

People with CF need to eat foods that are high in calories and protein throughout the day.They are able to take part in most activities and attend school. Many young adults with CF finish college or find jobs. The commissioning body Nice, which is responsible for drugs prescribed to 10,000-plus patients, will not take over approval for "low volume" drugs until next April.More than 9,000 people in the UK have cystic fibrosis, but the Kalydeco drug works on patients with a specific gene mutation, G55ID – known as the "Celtic gene", because it affects a high proportion of people from Celtic backgrounds.Kalydeco, which is available in the United States, Germany and Italy, has been so effective in clinical trials that sufferers have come off the transplant list or been able to walk again after being confined to a wheelchair by the lung disease.